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November 5 Ana Watson and MGA Home Healthcare nurse Chelle carry Preston to a bean-bag chair. Preston has suffered continuous myoclonic clusters most of the day. He had a 30-second grand mal seizure early in the afternoon. Preston’s new normal is to go straight back into myoclonic clusters after a seizure. Dravet syndrome children usually have a variety of seizure types, which can change for a number of reasons.
By not engaging more with providers, doctors often lack an understanding of the types of marijuana products their patients are using and are unaware of the sometimes contradictory advice their patients receive.
“That,” she breathed back in, “was pain.”
“Oma” — Preston’s grandmother Milly Raynor
May 29 Krista Ranken cuts shoots in order to clone plants in their vegetative state. The Stanley brothers have specialized in breeding high-CBD strains of cannabis, including Charlotte’s Web, for Colorado Realm of Caring patients.
Also known as cannabis oil or cannabidiol, industrial hemp oil has been growing in popularity as a self-treatment option for many people suffering from emotional or physical discomfort. While sometimes compared to medical marijuana, industrial hemp oil is not illegal, nor is it a psychotropic drug. Although cannabidiol is an ingredient in both regular and medical marijuana, the main component, THC, is only present in very small traces in cannabidiol cannabis oil. While some people may come across industrial hemp oil by looking for marijuana oil for sale, marijuana CBD is not the same. As mentioned, industrial hemp oil is not a drug, nor does it contain enough THC to produce a psychotropic effect.
Keeping daydreams in check
May 29 Jon Stanley follows a carefully designed watering schedule for the cloned plants and the more mature high-CBD strains of cannabis in their vegetative state.
Sadly at this point most of us are unable to buy strains like Charlotte’s Web due to cannabis prohibition. Yet, medical cannabis has been growing quickly as a movement, and so if you live in a state or country where medical cannabis has been legalized it may be possible to get CBD made from cannabis flowers. However until the prohibition of cannabis finally ends it will remain a challenge for most of us.
North Carolina
The nation’s leading researchers and pharmaceutical representatives working on new treatments for epilepsy gathered at a conference this June in San Francisco. They fit in a medium-sized hotel meeting room...
The hospital didn’t see any improvement in the before-and-after EEGs of four kids whose seizures appeared to lessen significantly. That may have been due to something called “electroclinical dissociation,” where the seizure still occurs but its outward indicators disappear. It also might be that parents can pick up on smaller improvements than an EEG can, said Dr. Kevin Chapman, a pediatric neurologist at Children’s who was a co-author on the study.
September 17 Preston helps “Paw Paw” Don Raynor tighten gates on the stairs during his grandfather’s visit from North Carolina to bring wife Milly her car. Milly has moved into her own apartment to relieve some of the tension that can arise between her and Ana. She plans to live in Colorado as long as her daughter and the children are here.
“Why did we even come down here if he’s not going to take it!?” she snaps.
On Apr. 7, 2015, the Idaho House approved a CBD oil bill by a close 39-30 vote. Named for 11-year-old epilepsy patient Alexis Carey, the legislation would allow parents to possess up to 32 fluid ounces of liquid cannabidiol (max 15% CBD and .03% THC) to administer to chilldren who suffer from seizure disorders. On Apr. 16, Gov. Butch Otter vetoed the bill. However, he says he'll issue an executive order requiring the state's Department of Health and Welfare to study the effects of CBD oil pn epilepsy; this may lead to accees to the oil for children. But Idaho at this point sode not qualify as a CBD-legal state.
HB 885, CBD oil legislation known as Haleigh's Hope Act (named for four-year-old Haleigh Cox), failed to receive a Senate vote after sailing through Georgia's House on Mar. 4, 2014. However, in May, Gov. Nathan Deal signed an executiuve order calling for a study. The British firm GW Pharmaceuticals and Georgia Regents University are collaborating on the research. The legislation was reintroduced for the 2015 session. The House passed it on Mar, 25, 2015. The bill covers eightt conditions, including seizures, cancer, MS, ALS, sickle cell and mitchondria. Gov. Deal signed the bill into law on Apr. 16, making Georgia the 13th state to legalize CBD oil.
Expand this story
Graphic: Inside look at Preston’s fight
Ketogenic diet, the doctor asks?
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