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So Ana visited her CBD provider, who gave her oil at a 10:1 ratio of CBD to THC, and the next day she watched as her son ate better than he had in months: a plate of fried okra, a plate of potato chips smothered in barbecue sauce, a stick of string cheese, a Frosty and, most surprising of all, tuna salad with crackers.
The CBD oil she was using then was a roughly 35:1 mixture of CBD to THC. But Ana, concerned that she wasn’t using the best formulation, sought out the opinion of a Denver doctor who specializes in making medical marijuana recommendations. The doctor, Alan Shackelford, suggested Ana try a mix with more THC.
May 11 To make sure Preston doesn’t bolt, Ana is tight beside her son, who wears his cool-down vest. The vest keeps his core temperature even. Here, he fishes and teases Lexi with a bluegill they just caught on Mother’s Day. It is a beautiful day for their last visit to one of Preston’s favorite places in North Carolina — the “lodge” at the Piedmont Quail Club, which his grandfather manages.
Preston pulls back toward the lunchroom
With CBD tinctures, capsules, creams and teas being sold on Amazon and eBay the legal status of CBD might feel straight-forward and secure, but these are CBD products made from hemp plants. When CBD is made from cannabis plants the law get a lot murkier.
Watch Dr. Kelly Knupp explains what doctors discover by examining Preston’s electroencephalogram.
Jared Stanley loads the drying poles
Related: Every patient’s Dravet syndrome is a little different
There have been times Blake would have a seizure every half hour, and his mother, Stacy Lynch, would worry how he would get through the night.
“It’s OK,” she whispers. “It’s OK, Boo-Boo.”
“You think you’d get used to seeing him like this,” she said. “But it scares me to death every time.”
She cracked it open and burst into giggles.
“That,” she breathed back in, “was pain.”
A carefully designed watering schedule
Keeping daydreams in check
Preston rests on his porch
Multiple Sclerosis
“Have you tried Stiripentol?”
Preston gives his mother a suspicious look
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