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May 8 The dregs of his afternoon seizure medications are still on his lips as Preston rests on his porch after a long day of school interrupted by numerous myoclonic seizures.
His cries fade to whimpers. His eyelids twitch with another seizure. Ana sits on the toilet, holding him on her lap as he quivers in her arms.
How much does it cost?
Seven months and 1,600 miles after their journey began, Ana has finally given Preston his first dose of marijuana.
“Have you tried Stiripentol?”
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DISCLAIMER: These statements have not been evaluated by the FDA and are not intended to diagnose, treat or cure any disease. Always consult with your physician before use. These statements do not guarantee same results as Advertised. 18 + ONLY. The Cannabidiol in CBD Drip is a natural constituent of the industrial hemp plant. CBD Drip does not sell or distribute any products that are in violation of the United States Controlled Substances Act (USCSA). Copyright 2014 CBD Drip. All Rights Reserved.
Overall cost varies based on the amount a child takes, which itself varies based on how big the child is. Different providers also charge different prices. For kids using Charlotte’s Web, a typical family spends about $300 a month for CBD oil.
Preston has been eyeing his sister’s bike
“Then you need to up it,” Jason says.
In advance of the move, Ana reduced the dose of one of the three main seizure medicines he takes — a drug called Onfi — because she had heard from other parents that CBD amplifies it. He was now taking about a third less than what Greenwood had prescribed, although she didn’t tell the doctor her plan.
Things are looking up at the RV park
She asks about the amount she’s giving. “Should I up it?”
“That,” she breathed back in, “was pain.”
Most important, no one knows how often it works.
And so this was the logical next step. A leap into the unknown.
A desperate hope and well-publicized stories about kids who have responded to the drug drive the families here, despite scant research on CBD’s overall efficacy. Scientists know so little about the treatment that it’s not even clear what CBD might do in the brain to impact seizures.
September 3 Ana is trying a new way of giving Preston his oil. She is giving him straight THC by mouth separately from the CBD oil she gives him in his feeding tube. He hated it. She squirted it in and he started spitting and sputtering as soon as he tasted it. She ended up mixing it with formula and using his feeding tube. By using the oil separately she can figure his dosing ratios for tighter control.
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